Once again we did a sleep deprived EEG. Of course that also means that I am sleep deprived because Larissa was not going to stay up until midnight and then get up at 5 am all by herself.
As soon as they got the probes on her she fell asleep. Shortly after that she had a seizure. Her seizures are so numerous and reliable that it is easy to get them recorded. The problem is finding a way to stop them without taking away from her quality of life.
Say a prayer for her that the right medication can be found, we go back later in October to discuss options.
Unfortunately 11:30/midnight until 5:07 is my normal sleep time. I set the clock for 5:07 because it seems more humane than 5:00! Off to Disney Oct 11. Come on down!!
ReplyDeleteMy normal is 1 am to 6 am but it is normally my time, not keeping a tired kid awake time. I would come on down if I could afford it.
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