Lately life has been hard. April of 2022 John’s voice changed. The neurologist said he had a stroke. I was skeptical and nothing showed on the MRI or CAT scans. I was told that it didn’t always show up. We went on with life but I knew it wasn’t a stroke. By March of 2023 the neurologist acknowledged that we were looking at something else and ran a bunch of tests. April of 2023 John was diagnosed with bulbar ALS. I didn’t know that there were different types of ALS but as soon as I read the description, I knew. ALS is awful! We are already a year in and John is declining fast. We can’t get things fast enough. I need the ramp last month, I am terrified he will fall down the stairs. He is falling and uses a wheelchair whenever we go anywhere. My last day at my job is the 7th, I am staying home. John got a feeding tube last month and I am struggling to keep everything together.
