After struggling with bulbar ALS for about 2 years, my husband passed away in January. He was officially diagnosed in April of 2023 after a year of believing he had a stroke in April 2022. After 31 years of marriage I am left to manage our family. I dearly miss being able to share life with my husband. Often I have things I want to share with him and then realize that I am not able to do so. We all are dealing with the effects of watching him die piece by piece, ALS is a horrible condition. It steals so much from you. Thankfully I was able to care for him in our home and he passed away peacefully in his sleep.
